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New Recommendations for Prenatal Genomic Sequencing: What Families Should Know

Genetic Testing, News, Pregnancy / By

September 2026 Genetic testing in pregnancy is changing quickly. This month, a new set of international recommendations from the International Society of Prenatal Diagnosis (ISPD) and the European Society of Human Genetics (ESHG) was published outlining the use of a type of testing called prenatal genomic sequencing. These recommendations give healthcare providers guidance about when …

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Addressing Misinformation About Down Syndrome

Advocacy, Disability, News / By

By Stephanie Meredith, MA, DrPH and Viviane Polarson, MS, CGC A recent viral video posted by a popular YouTuber with more than five million followers has brought renewed attention to a topic that genetic counselors, medical professionals, and Down syndrome advocacy organizations care deeply about: the quality of information available to pregnant patients at the …

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Genetic Support Foundation Awarded Funding to Identify Patient-Centered Achondroplasia Research Priorities

News / By

We are pleased to announce that the Genetic Support Foundation (GSF) has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support a new project titled “Convening to Identify Patient-Centered CER Priorities of Individuals with Achondroplasia and Families.”  …

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HRSA Grant Progress Update – Year 2 Highlights

Advocacy, Genetic Counseling / By

We’re excited to share the remarkable progress made during year two of our multi-year HRSA Healthy Tomorrows Partnership for Children Program (HTPCP) grant, which funds our continued efforts to expand access to genetic healthcare across the Pacific Northwest. Expanded Patient Care and Community Impact This past year marked significant growth in our ability to serve …

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Who Defines “Health” and What Purpose Does Its Definition Serve?

Advocacy, Disability, Health / By

By Devin Shuman, CGC (she/her) and Andrea Schelhaas, CGC (she/her) *Of note, we purposefully use capital D in Disabled and capital A in Autistic in this text as individuals who embrace disability as a core part of our identities and who are part of the larger Disability community advocating for disability rights and equality.  Today, …

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