Part 3: Stitching the Values of Our Future Follow this upcoming series of blog posts to track the rise of the pronatalism movement in Silicon Valley, the threads of eugenics woven into the fabric of that movement, and the snags of humanity that may yet unravel a carefully stitched path toward a dystopian future. As …
The Rebirth of Eugenics: Tech Bros and Pronatalism Read More »
Part 2: Weaving Together Unlikely Allies in Defense of Good Parenting Follow this upcoming series of blog posts to track the rise of the pronatalism movement in Silicon Valley, the threads of eugenics woven into the fabric of that movement, and the snags of humanity that may yet unravel a carefully stitched path toward a …
The Rebirth of Eugenics: Tech Bros and Pronatalism Read More »
Part 1: The Threads of 20th Century Eugenics Interwoven with Modern Pronatalism Follow this upcoming series of blog posts to track the rise of the pronatalism movement in Silicon Valley, the threads of eugenics woven into the fabric of that movement, and the snags of humanity that may yet unravel a carefully stitched path toward …
The Rebirth of Eugenics: Tech Bros and Pronatalism Read More »
By Andrea Schelhaas, Stephanie Meredith and Katie Stoll In November 2021 under the Accelerated Approval Program, the U.S. Food and Drug Administration announced approval of Voxzogo (vosoritide), a drug developed by BioMarin for the purpose of increasing linear growth in children with achondroplasia with open growth plates (individuals who are actively growing). Achondroplasia is the …
Pharma’s Role in Practice Guideline Development: Achondroplasia as a Case Study Read More »
This article is written by Dr. Stephanie Meredith, the Development Director at Genetic Support Foundation and the Supervisor of our Lettercase National Center for Prenatal and Postnatal Resources. She is also the mother of a young man with Down syndrome and has worked in disability advocacy for nearly 25 years. The past two weeks have …
Join Patients in the Fight to Save Medicaid and Social Services Read More »
By Chase Beeler, Rachel Westman, and Devin Shuman New Developments A recent study published in Nature Medicine, and a follow up article in the New York Times, has added to and challenged our understanding of the genetics of Alzheimer’s Disease. Based on the data analyzed, this study is claiming that a specific variant in the …
Causation versus Susceptibility: Alzheimer’s Disease, Genetics, & APOE Read More »
The recent update to 23andMe’s DTC test in September 2023 expanded their BRCA1/2 analysis to detect a total of 44 specific variants, including those evaluated previously1. This certainly will increase the detection of genetic variants in the BRCA1 and BRCA2 genes for individuals beyond those who are of Ashkenazi Jewish ancestry. However, given that there are thousands of genetic variants in these two genes that are associated with hereditary cancer risks, it is important to recognize that the updated 23andMe test will still miss the majority of people with BRCA-associated hereditary cancer risks.
Photo credit Jill Martin Instagram A couple weeks ago, I received a message in a group text chat with friends and patient advocates. Janet wrote, “Jill Martin is sharing our message of inheriting mutations from our fathers!” Her sister Eileen shared, “I just watched it. It really touches home.” Jill Martin, lifestyle contributor of the …
by Julie Simon, MS, CGC In the new mini-series Limitless, Chris Hemsworth sets out to explore ways to combat aging and live a long and healthy life. It will come as no surprise to most that the answer lies in being active, eating well, and spending time with your friends and family. Sure, there are …
In 2012 when Dr. Jon Wolff founded Genetic Support Foundation (GSF) he envisioned the newly formed non-profit organization would provide “unbiased, expert and compassionate care for patients.” Not only does this year mark the ten year anniversary of our founding but this week in particular marks the somber two year anniversary of Jon’s passing. These …
