We are pleased to highlight board member, Dr. Cobie Whitten, who brings her experience and passion as a patient advocate to the Genetic Support Foundation. For more than 30 years, Cobie Whitten has worked tirelessly to support patients facing a cancer diagnosis and improve survivorship services for those patients and their families at all points …
By Devin Shuman, MS, CGC and Jenny Rietzler, MS, CGC Have any of y’all read the most recent American Society for Reproductive Medicine (ASRM) recommendations for gamete and embryo donation lately? Probably not if you don’t work in ART (assisted reproductive technology). It’s a bit painful, particularly if you comb through it with a JEDI …
Hello friends of Genetic Support Foundation (GSF)! We hope your 2023 is off to a great start! As we move more fully into this new year we mark 2022 as a milestone and are reflecting on all that we have achieved over the past decade. The year 2022 was the 10th anniversary of GSF’s founding. …
Genetic Support Foundation board president, Daniel Bellissimo, has been a national leader in the field of molecular diagnostics and human genetics for over thirty years. Daniel earned a Ph.D. in biochemistry from Duke University then spent 23 years at BloodCenter of Wisconsin in Milwaukee as director of the Molecular Diagnostics Laboratory. He is currently an …
Image of two female presenting individuals sitting at a dark brown table with a black office chair and a window with blinds behind them. One woman, has light skin, straight dark brown hair and is wearing a grey shirt, is in the far left of the image and is facing away from the camera. Her …
Genetic Counselors and Assisted Reproductive Technology: The Perfect Partnership Read More »
At Genetic Support Foundation our work ensures that the people we serve have up-to-date and balanced information about genetics and health. We support individuals as they make informed and autonomous decisions about genetics and their health that are based on objective, balanced information that is free from commercial influence and other such biases. The importance …
The Importance of Timely Access to Objective Genetic Counseling Read More »
Rectangularly black flag with 5 straight lines going from the upper left corner to the lower right. The top line is a light kelly green, the second is a light sky blue, the middle stripe is white, the 2nd from the bottom is a light yellow and the bottom stripe is a light red.
July 22, 2022 is World Fragile X Syndrome Day, designated by the United States Congress in 2000 to raise awareness about Fragile X syndrome, the benefits of early diagnosis and to advocate for more research funding for treatment. What is Fragile X Syndrome? Fragile X syndrome (FXS) is one of the most common causes of …
In 2012 when Dr. Jon Wolff founded Genetic Support Foundation (GSF) he envisioned the newly formed non-profit organization would provide “unbiased, expert and compassionate care for patients.” Not only does this year mark the ten year anniversary of our founding but this week in particular marks the somber two year anniversary of Jon’s passing. These …
Stephanie Meredith has a long history of advocating for inclusive policies and resources for individuals with a genetic diagnosis. She is the Medical Outreach/Lettercase Program Director for the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute where she markets and distributes resources about genetic conditions such as …
