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Advocacy

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Gratitude for Genetic Support Foundation

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The Importance of Timely Access to Objective Genetic Counseling

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The Jon Wolff Memorial Fund

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How Widespread Prenatal Testing for Microdeletions Can Hurt Patients and Why the Genetic Testing Industry Needs More Accountability

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Stand Up for Access to Independent Genetic Counseling Services by Supporting S.1450 / H.R.2144 – the Access to Genetic Counselor Services Act of 2021

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Charity Care Means More Access to Genetic Counseling

Advocacy

Gratitude for Genetic Support Foundation

I began working with Genetic Support Foundation (GSF) in the fall of 2014, two years after its founding, a decade ago. I have held a few different titles, (consultant, genetic counselor, director of clinical services, executive director) and worn about every hat possible (provider, scheduler, project manager, supervisor, janitor!). As I reflect on my years, …

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The Importance of Timely Access to Objective Genetic Counseling

At Genetic Support Foundation our work ensures that the people we serve have up-to-date and balanced information about genetics and health. We support individuals as they make informed and autonomous decisions about genetics and their health that are based on objective, balanced information that is free from commercial influence and other such biases. The importance …

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How Widespread Prenatal Testing for Microdeletions Can Hurt Patients and Why the Genetic Testing Industry Needs More Accountability

by Katie Stoll The New York Times published an important investigative piece this week, exploring concerns about expanded prenatal genetic screening. Specifically, the article focuses on the practice of prenatal screening for the possibility of a microdeletion condition in the fetus. The authors Sarah Kliff and Aatish Bhatia walk readers through some of the microdeletions that are …

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Stand Up for Access to Independent Genetic Counseling Services by Supporting S.1450 / H.R.2144 – the Access to Genetic Counselor Services Act of 2021

Hello Genetic Support Foundation friends, followers and family! Genetic counseling services are not yet recognized for reimbursement by Medicare. As genetic technology expands and holds promise to improve health for all people, Medicare recognition is perhaps the single most important action to be taken that could ensure people have access to independent genetic counseling services. …

Stand Up for Access to Independent Genetic Counseling Services by Supporting S.1450 / H.R.2144 – the Access to Genetic Counselor Services Act of 2021 Read More »