By Stephanie Meredith, MA, DrPH and Viviane Polarson, MS, CGC A recent viral video posted by a popular YouTuber with more than five million followers has brought renewed attention to a topic that genetic counselors, medical professionals, and Down syndrome advocacy organizations care deeply about: the quality of information available to pregnant patients at the …
Contributing authors: Andrea Schelhaas, Cruzanne Macalligan, and Colleen Gioffreda When you learn your child has dwarfism, it’s natural to have many questions. That curiosity is a great thing – it’s part of how we learn and grow as parents. The good news is you’re not alone in any of this. The dwarfism community is open, …
By Devin Shuman, CGC (she/her) and Andrea Schelhaas, CGC (she/her) *Of note, we purposefully use capital D in Disabled and capital A in Autistic in this text as individuals who embrace disability as a core part of our identities and who are part of the larger Disability community advocating for disability rights and equality. Today, …
Who Defines “Health” and What Purpose Does Its Definition Serve? Read More »
